Archive for April, 2009

Vince Gandolfi ALS Benefit Dinner

Vince Gandolfi ALS Benefit Dinner

Please join us in honoring one of the most family oriented men and all around great guy, Vince Gandolfi.  Vince was recently diagnosed with ALS and we are hosting a party/fundraiser to help raise a significant amount of money to be donated directly to the ALS Research Team at the Cleveland Clinic.  We look forward [...]

Barry Winovich Needs To Drink More Coffee

Barry Winovich Needs To Drink More Coffee

Caffeine Appears To Be Beneficial In Males, But Not Females, With Lou Gehrig’s Disease
(Apr. 21, 2009) — Amyotrophic lateral sclerosis (ALS) is a fatal disease that damages key neurons in the brain and spinal cord. The disease causes progressive paralysis of voluntary muscles and often death within five years of symptoms. Although ALS (Lou Gehrig’s [...]

PatientsLikeMe Launches Genetics Search Engine for ALS Patients

PatientsLikeMe, the leading online community for people with life-changing conditions, announces the launch of its Genetics Search Engine for its ALS patient community. Through the PatientsLikeMe platform, patients can now share genetic information and find others like them by the gene (and even the specific mutation in that gene) causing their condition.
“This is the world’s [...]

The Seeing-Eye Mouse

The Seeing-Eye Mouse

An innovative camera helps the disabled roam online…
Margrit Betke, a College of Arts & Sciences associate professor of computer science at Boston University, believes the networked world isn’t nearly as inclusive as it ought to be.
“The community of people with severe disabilities is not really well served by computer science,” Betke says. Many people impaired [...]

The ALS Association’s ‘ALS Across America’ Focuses On Staying Positive and Involved

For the second consecutive year during ALS Awareness Month, The ALS Association’s “ALS Across America” campaign will recognize people throughout the United States living with amyotrophic lateral sclerosis for their courageous battle with Lou Gehrig’s Disease.
The campaign shines the spotlight on men and women from all walks of life who despite having the progressive, neurodegenerative [...]

VA sees connection between ALS and military service

VA sees connection between ALS and military service

Thursday, April 9, 2009
The Department of Veterans Affairs has determined that there is a connection between military service and amyotrophic lateral sclerosis, which is known as ALS and Lou Gehrig’s disease.
Joseph Armstrong, the state director of the Order of the Silver Rose, provided the Sanford News with a press release detailing the department’s announcement. Armstrong [...]

Ironman France Competitor Will Race for the Bright Side

Ironman France Competitor Will Race for the Bright Side

The Bright Side of the Road Foundation is proud to annouce that Desiree Cowie will be competing in the IronMan France competition in Nice on June 28th, 2009, and raising money for the Bright Side of the Road Foundation.
Desiree said, “Most of us are so fortunate that we can choose to train, everyday we have [...]